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Women’s pain is too often dismissed, recorded as emotional, misunderstood and misdiagnosed

Women’s pain is too often dismissed, recorded as emotional, misunderstood and misdiagnosed

Women’s health must be prioritised, MPs urged, amid evidence showing the UK has the largest female health gap in the G20 – a forum for the world’s major economies.

A debate in Parliament on women’s health heard how a public call for evidence has been overwhelmed by more than 800 responses in just a few days, showing the strength of feeling on the need for better focus on women’s health.

The mesh scandal has highlighted the appalling treatment of women, the debate heard, and had the thousands affected been men suffering horrendous pain as a result of a medical procedure, dismissal on such a scale would never have occurred. Nor would compensation and recognition of the scandal be such a painfully slow process.

“Women’s pain is too often dismissed, recorded as emotional, misunderstood and misdiagnosed. It’s got to change,” said MP Helena Dollimore.

She continued: “We have heard stories from women up and down this country of not being believed, not getting diagnosed and then having difficulties obtaining treatment when they do finally get that diagnosis. I want to highlight the underlying themes that are too common in so many of these cases. For too long, women have had to fight to be believed and to be taken seriously, which can result in them losing their jobs. Their relationships, mental health and wellbeing can be affected. So many women have got in touch to share their stories of going through endless appointments and referrals in search of a diagnosis. During the long waits, women wait needlessly in pain and in huge suffering. For some, sadly, the long wait has proved fatal.”

MP Sharon Hodgson, who has championed the mesh injured community for many years, and whose mam has suffered the appalling effects of mesh and also of not being believed, spoke about the importance of women being believed by healthcare professionals, and the detrimental effect on women when that is not the case.

Sharon said: “The UK has the largest female health gap in the G20, and that is attributed in part to the misdiagnosis of conditions in women. It is absolutely shocking that eight in 10 women in this country report not being listened to by healthcare professionals. Those discrepancies extend beyond the confinement of the consulting room; they actively reinforce beliefs among wider society that women’s symptoms, no matter how debilitating, are normal. That is likely to prevent so many women from seeking medical advice, ultimately putting them at risk. Therefore, that widespread problem does not just perpetuate systemic misogyny but directly impacts women’s health outcomes and endangers their lives.

“Published in August 2022, the 10-year women’s health strategy for England included a six-point plan on how to improve health outcomes and the way that the healthcare system listens to women. No. 1 on the list was to ensure that women’s voices are heard. In the month of the first anniversary of the publication of the excellent Hughes report, there is no better time to speak on an apt example of what happens when women’s voices are not heard.

“As the chair of the All-Party Parliamentary Group on First Do No Harm, Mesh, Primodos, Valproate, I campaigned for justice and compensation on behalf of the thousands of women who live with the consequences every day of what happens when women’s voices are not listened to. The mesh scandal in particular exemplifies that perfectly.

“To set the scene, it is believed that 40,000 women in this country could be affected by mesh damage and complications, and 10,000 of those women have been left with disabilities, as the mesh has cut into their organs and nerves. I hear from mesh-impacted constituents who describe desperate situations of poverty, depression and isolation as a result. Many have lost their jobs, their marriages and their trust in a service that is supposed to be there for us when we are sick, not make us sick.

“Perhaps even worse was the treatment of those women when they realised that it was the mesh that was causing their health complications. The women then report being gaslit, undermined and ridiculed when trying to sort out a mess they had no part in making, or even consenting to in most cases. Among the thousands of mesh-injured women is my own mam. I personally sat next to her at our local hospital and watched her be gaslit and undermined by her original surgeon when she first sought help with her pain and symptoms. Despite now having had her mesh removed by the wonderful Dr Suzy Elneil in London, the complications sadly do not stop there.

“The way mesh attaches to our organs has been likened to the way that chewing gum gets caught in our hair, so it is almost impossible to fully remove it. As such, regardless of the removal, my mam, now 80, is still struggling and in her own words, will never be the same again. The important point is that had my mam and the thousands of others affected been men suffering horrendous pain as a result of a medical procedure, I do not believe that dismissal on such a scale would have occurred. Nor do I believe that compensation and recognition of the scandal would be such a painfully slow process.

“Before I finish, I put on record my gratitude to my friend who recently retired from the other place, Baroness Cumberlege, for all her work on this issue.”

Click here to read the full debate

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